Laura told me she was working on something tonight...for Zoë. This Go Gold For Zoë meme is what she meant. I still have trouble accepting that Zoë passed away two years ago. It seems so unfair that any child would have to fight for dear life. It's worse that my child had to endure that battle.
I love this picture of Zoë sleeping with her friends, the stuffed animals. It's a beautiful picture. It's peaceful, when at the time of my life, things were certainly not peaceful, but always a whirlwind of emotions and precarious certainty.
Many times I wish I could peak in the nursery and look down on my sleeping Warrior Princess as easily as it is to load a picture.
Will I ever see my daughter again? It is possible that we will have the opportunity to reconnect with Zoë before long. Laura contacted a professor at Brown University, who manages Ladd Observatory in Providence, RI.
This is significant because in 2012, a group of employees at Citizen's Bank pulled together enough money and actually bought the rights to name a star after Zoë. The professor agreed to arrange a night in 2015 when Zoë's star is in the skywhere we may come to the observatory and view the star. It's too far away to see by eyes alone, but with the help of science and a powerful telescope, Laura and I will reconnect with our darling Zoë again in this life.
I am very pleased with the efforts by made by everyone who made The 3rd Annual Zoë Festival a success. Zoë Fest raised more than 1700 dollars and was attended by roughly 60 people.
The hall was donated by Jenks Lodge in Pawtucket, RI.
Photographs were taken by Mary Louise Delano.
The music provided by the talented Lauren King.
The delicious food was provided by Catering Connection.
Items donated to our raffle table were donated by the following businesses:
Friendly Neighborhood Comics
Foxy Travel, Inc
Punks for a Princess
Providence Baptist Church
Pinecrest Lawn Specialists
Rhode Island Ninjutsu Center
AMF Lanes in Taunton, MA
Amy Gaskell and Macaroni Kid
Jess Duckett and Zimi Photography
Cathy's Creations & Sofia's Angels
Body Language Spoken Spin Class
Jenny Foster & McVan Jewelry
The New Britain Museum of American Art
World Music/Crash Arts
Dana's Hair Salon
Christine Keene from the Krazy Daisy Consignment Store
Danielle Lafierre, Scentsy Consultant
Jim Collins, Featherwood Crafts
Lindsey Wolstenholme-Krupski, Captured in a Moment
Thank you for the memory! We hope to see you next year!
I will be performing chair massage at the Douglas Farmer's Market on June 28th 2014 to raise money for The 3rd Annual Zoë Festival. Zoë Fest is an annual event to benefit the Boston Children's Hospital . My chair massage fundraiser will be a series of five days throughout the summer (All 5 dates will be announced soon.)
100% of the money raised will be invested in Zoë Fest or be donated directly to the Boston Children's Hospital.
If you are interested in scheduling a chair massage with me, please email me at firstname.lastname@example.org I will happily reserve a time especially for you. And if you book a 20 minute massage, I will give you a free Team Zoë tee shirt. (While Supplies Last.)
Laura was called out by Sara Fitts to do the cold water challenge. Because Laura is pregnant and not allowed to participate, I am doing the challenge in her place. We will donate $10 to her chosen charity the Ronald McDonald House in Providence.
I am calling out the following people, Seth Joubert, Daniel Joubert, Jr., Jennifer Croft, Anthony Pirri, Stephan Saraidarian, Tommy Holton, and Ashley Silverman.
I’ve called you out because I believe that you are crazy enough to honor this challenge, and to be creative enough to find cold water even in the summer.
You have one week to do this challenge and donate $10 to The Zoë Faye Foundation in honor of Zoë, or you can keep warm and dry and donate $100 to the same charity.
Get COLD for charity!
www.teamzoecancersucks.com -- Supports the Boston Children's Hospital
www.foreveryoungmassagetherapy.com -- All profits of FYMT is donated to charity.
My heartfelt thanks for your donations go out to:
Anthony Pirri and Tony's Seafood in Seekonk, MA
Jennifer Fox Croft
I am excited to be working with The Children's Hospital Boston, and the people who organize the Tuff Scramblers 5K obstacle course over in Rehoboth, Massachusetts.
On May 17th, I am going to set up an area where I will offer chair massage to athletes and spectators to benefit the Children's Hospital. I set a goal for 400 dollars and if I stay busy all day, I will easily reach it. Of course, I want to crush the goal....
Here are the details: Tuff Scramblers is the "Ultimate 5K Adventure Race." That is their slogan, and I don't mind endorsing it as such, because I've run the race twice and loved it both times.
Parking is located at 20 Francis Street Rehoboth, Massachusetts. There is a second lot close by if the first one is full. The price to enter the event as a spectator is five dollars. However, if you bring two packages of non-perishable food items, you'll get in for free. Those items will be donated to the Bethel Community Development Rehoboth Food Pantry. Children 14 and under get in for free.
I'll be ready to start massage as soon as I am allowed. I know that registration for athletes starts at 8 AM. I'll be charging a dollar per minute and 100% of the money I raise will be mailed to the Children's Hospital Trust within 7 days after the fundraiser. I will be accepting cash (be mindful that there will not be an ATM machine on location) and Checks (all checks made out to the Boston Children's Hospital is a tax write off).
I hope to see you there. Tuff Scramblers put on a good show. After each race, there will be food, drinks, and music. And of course chair massage! That' what I am all about!
Why did I chose the name Forever Young?
It is cliché that I would decide on naming my massage practice Forever Young, considering that my surname is Young. Under normal circumstances I would have immediately shot down the mere suggestion. I do not practice massage therapy under normal circumstances.
Back when Laura and I were searching for a middle name to give Zoë, Laura joking suggested naming our daughter, “Zoë Forever Young.” Of course, I immediately said no, and as our dialogue progressed, you know we settled on Zoë Faye.
By the time Zoë was born, I regret to say that I had stopped practicing massage therapy after an exciting career. Like many of my colleagues, I became victim to “burn out.” I went to school and became a phlebotomist instead.
Zoë got sick, and we spent three months at Boston Children’s Hospital. From the time Zoë was born, through the challenges of caregiving to an infant with cancer, I recognized the innate power of unconditional love within myself for my daughter. I witnessed the suffering she went through, and the mutual suffering she shared with other children fighting cancer. My passion for massage therapy was rekindled for the sake of my crusade against pediatric cancer.
I have skills and an ability to help people feel good. Massage has so many positive benefits. It can help facilitate the body’s natural healing abilities. Forever Young Massage & Bodywork was born amongst the suffering brought on by cancer. Forever Young was born with the mission to help people feel better while at the same time supporting pediatric cancer research. 100% of the profits will be donated to organizations doing the best work to stop cancer from hurting our children.
If you are interested in supporting my mission, please call to schedule a massage in the comfort of your home at your convenience.
Some days Zoë’s death hurts so much more than usual. I am immersed in the pain less these days because I’m so busy raising Esmée. But it still hurts every day.
Tonight, I’ve been sifting through videos of Zoë and Laura that I took from the hospital on my old phone. For some reason when I transferred the video to my computer, the sound was lost. It is interesting to watch the silent videos. I don’t make up dialogue or imagine background noises, I just find peace in the silence. Somehow they seem less real. Then there are videos with sound and I compare Zoë’s voice to Esmée’s. Many things about my two daughters make them so different and unique from each other. Zoë was so tiny and delicate to handle with the tubes entering her body from so many angles. Esmée is such a chunky monkey. Her rolls have rolls. Esmée has so much hair!!! Zoë lost hers.
I watched one video of the last day or two of Zoë’s life. It had audio. It was nice to hear the voices of my in-laws talking to Zoë. I know how much they were affected by Zoë’s death. One of greatest sites I’ve ever witnessed was seeing Laura’s grandparents interacting with Zoë for the first time. It was also one of the saddest moments in my life to see the devastation in their eyes when they walked into our bedroom to visit Zoë for the last time.
In the video, Laura must have taken the bottle away from Zoë because she began to cry. It was weak and sad. I thought that was how it was to listen to my child dying. When my time nears, will I sound like baby using every ounce of strength to be heard?
The break in this post is to signify that there was a break in my writing. I was drawn away from my computer and lost momentum. I didn't want to end the post the way it would have if I ended as it appears above. Though my sadness shows, I wanted to somehow leave it on a positive note. After all, my blog is about realizing dreams to reality. Zoë's life had purpose. It made me a father and a better man. I cared for her with all my heart and carried her though this life as far as I could. I will always love Zoë. I'll love my wife and second daughter twice as much as I could have done without Zoë teaching me unconditional love.
The best thing I learned tonight was after uploading these videos to our website, the audio returned. I don't know why or how, but the sound is back! I hope you enjoy these gems.
If more people thought that way, the whole world would be a better place! Thank you Paul Newman for your remarkable contribution to society!