Like a lot of people today, I am keeping in mind all the men and women who sacrificed their lives to ensure that the rest of us can have our freedom. And of course, I thank the men and women who currently serve in the U.S. Military. You are doing something that I don't think I can do. Your honor and bravery is commendable. Thank you!
I want to be upfront, because I made this mistake and had to correct a couple of friends, too. The bike run is with motorcycles. If you ride a bike, you already know that, but for folks like me who have a bicycle, we were all excited to pull "our bikes" out of the garage and dust off the cobwebs. You can still bring your bicycles, if you want to try to keep up with the steel horses. Lol!
Well, Tammy Jones, who works at All American Cafe in Webster, Ma is the mastermind behind this event. It looks like its going to be a blast (on and off the bikes.) There are going to be raffles, and live music. Expect to release a few balloons, too.
The signup for the bike ride starts at 10 and the bikes will promptly leave at 11am. They will have several stops in the Central Massachusetts area, including the following stops: Pot Belly Pig, Sticks, and 200 Sportsmen. If you can't make the ride beginning at Singletary Rod and Gun Club, join up at one of the stops.
I think we are going to need a camera man to film the bike ride...Hmmm...Who do I know that has a video camera? I"ll have to put my thinking cap on. The same as my bike, the thinking cap may be a little dusty though... ; )
We will have the raffles, a balloon launch, and live music after the bikes leave and dinner will begin sometime between 4 and 5 pm. Tickets are 20.00 dollars apiece and all the proceeds will benefit the Zoë Faye Foundation and helping families afflicted by Rhabdoid Tumors and fund research for new, creative treatments and a pathway leading to a cure.
Tickets are on sale and you can buy them directly from our website or through me. Email me for more details. Zeppo.firstname.lastname@example.org
Please purchase tickets by May 26th so that we have a better idea of how much food to buy. We are going to buy extra food, for those who come on June 2nd, and don't have tickets. I can't wait to see you there!! Please share this like through facebook, twitter, and any social media that you use. Thank you!!
Yesterday was a big success at the AMF Taunton Lanes. A lot of people united for the Bowling for Zoë event. We raised a good amount of money and awareness. Since leaving for Florida last month, this was the first event hosted in honor of Zoë.
It would not have been so successful without the help of AMF Taunton Lanes, the volunteers who helped us set up, the wonderful local businesses who donated valuable raffle prizes, and of course all the awesome people who were there to bowl.
Yesterday's event was successful, because I got to see so many of my friends and family, make new friends out of strangers, and see old friends that haven't been in my life for years. I got to see who the good bowlers were and who needs a good massage and chiropractic. Incidentally, my massage schedule is clear this week, should you be one of those people who bowling made sore. Lol!
Zoë will continue to strike fear into the heart of cancer because we organize with a purpose. The Zoë Faye Foundation is destined for greatness.
"People were designed for accomplishment, engineered for success, and endowed with the seeds of greatness."
~ Zig Ziglar.
THANK YOU for helping us advance our goals and our future where cancer is a word that does not exist.
Many people would think that the holiday yesterday was one to have with despair, and morn for our loss. Yes, it was difficult to wake up without Zoë on Mother's Day, but it is not easy everyday. Yesterday, a few people continued to give us their condolences, a little more than usual because of the holiday.
I need to express myself: Zoë is not here in body. However, her spirit elevates me and my ambition to achieve more than I thought possible. Zoë Faye Forever! I will always be her father and as long as I live, her life will not go unsung and she will continue to impact this world.
Laura mentioned in her blog that I picked up Zoë's ashes from the Boucher Funeral Home yesterday. It wasn't as hard as I expected. Obviously, I wish I didn't have to do any of this. It is what happened and what was needed to be finished. As strange as it may sound, I am just so happy to have my baby girl home. Her little blue urn has white birds on the side. Its called, "coming home birds." I'm so happy that my little bird has a permanent nest built in my heart and any place I call home.
During the drive from Pascoag to Webster, I talked to Zoë like I would have before and occasionally caressed her urn, like she might be sitting next to me and I was patting her leg. "Baby girl, together we are going to accomplish many, great deeds."
People often comment on my strength, I pray for the strength to see her foundation through. One of my goals is to contact the Central Massachusetts branch of S.C.O.R.E. and learn to take my first step as guardian of my dream of a little girl who touched my life. As long as I am using my lungs and can move my legs, I will chase cancer right off the planet. It doesn't have a place here. No on invited you, cancer, and you have overstayed your visit.
Are you a survivor? Have you lost anyone dear? Do you know someone who is fighting the good fight? In your opinion, what can make a difference in one person's battle with the awful disease?
When I was working and making the commute to Boston, it really helped me out when someone gave me a Mobile Gas Card. How I was going to buy fuel was one less thing that I had to think about. And at that time, precious moments were so few that my family was the only thing I needed to think about.
What else helps? I'm curious to hear your opinions.
I want to take a moment and thank Mike Marcy and Hank Stolz of Charter TV3 for having us on The Hank Stolz Experience. In hind sight, I wish we had more time to elaborate on Zoë's story and our goals, but today was the beginning of a mighty journey.
One little girl's light shines so bright even when she is no longer here in body. I thank God for being blessed with someone as special as my wife, Laura, and my daughter, Zoë.
We will post our segment on our website as soon as possible. Thank you!
We are home. It is cold here, compared to south Florida. I can't wait for another week or so before I plant my summer garden. Laura and I agreed that it is a good thing to really take care of the garden this year. It was neglected last summer, with all the wedding and honeymoon preparation. But this year, I have a gift card to Home Depot and a lot more free time to plant vegetables.
I imagine that this year is going to be about growth. As someone recently told me when I was feeling down, "Life will not be the same. It can't be. But time will heal my wounds and I will find a new normal."
Every day is a struggle. I struggle with everything that has happened. It is ridiculous how much I miss my daughter. It was not easy to come home after having a glorious “vacation”, one that would have so many people raving over. I didn't sleep more than two hours the night before our flight home. There was the wait at the airport in New Orleans, the layover in Philly, and the commute to our house in Webster. The disorganized home. The slighted cats. And the unoccupied nursery.
Some days I am winning the battle with my emotions. Some days I am the victim of my daughter's fate. I am preparing to get my license to practice massage therapy in Massachusetts. I am working on the Zoë Faye Foundation. I will continue to work in the hospital. Life will continue with or without me, if I don’t make the choice to live.
There are not a lot of minutes in each day that I don't think about Zoë. I told Laura that I was afraid that I would forget what her smiles look like, or what her laughter sounds like. There were a few days that I thought forgetting enough details would be how I essentially heal. I can't forget. A huge part of my time and energy goes into not forgetting. That is why I think about her almost all the time.
I have been reflecting on the egg, the carrot, and the coffee bean. I am currently put to that test. I don't have the answer. Some days I feel like the egg or the carrot, sometimes my feelings rapidly switch between both. I hope that in the end, I am like the coffee bean and offer good things to all those around me.
I accept that life is hard, it is not fair. Life is also for the living. It’s important to remember those who have passed away, and it is as important to celebrate what we have here and now. Because in a heartbeat, everything we have might be lost.
I have this memory of Zoë looking up at me with her big, inquisitive eyes (You know what I'm talking about once you have seen her pictures.) I don't know what she was thinking. But she often looked at me that way. I keep the memory fresh in my mind because that is how I want to remember her. The good times we had. I don't want to dwell on her pain and suffering, because that becomes my pain and suffering. If she can watch me now, and see me in the future, I want her to see me take my memories and transmute them into something greater because of my experiences with her, our love for each other.
There are several benefits in Zoë's honor coming up on us soon. I look forward to attending each benefit and doing everything in my power to kick cancer down. The Zoë Faye Foundation will help people battle their cancer and support the scientists who are going to find the cures and the new treatments to improve life. If you live in New England and want to attend these benefits or help us in this battle against cancer, please see the events page for dates and times. Or contact me directly, if you have something you can offer or if you want something to do. Team Zoë is alive and vibrant. And together we will overcome this wicked disease.
Its now been over a month since Zoë stopped hurting, but my pain is as fresh as ever.
Laura and I have been home from our trip now for almost a week and there are reminders of hopes and dreams everywhere. I want to be as strong as so many people perceive me. My sleep schedule is completely reversed. Last night I went to bed when I used to be waking up for work. I know time heals all wounds, one day at a time, one foot after another, one heartbeat before the next....That isn't fast enough for my needs.
I thought I heard Laura say that someone might have found the balloons that we launched from Fenway Park, the balloons that Zoë released from her long, skinny piano fingers.
Cancer just sucks. It sneaks in through the back door unannounced and uninvited and takes the most important people away from us. I wish someone would have just robbed my house instead. At least that way, I could just buy a new t.v. and other things and move on feeling only slightly violated for a while. My daughter though.... I'm not a violent person, but I feel like if someone pushed my daughter down on the ground or punched her in the face, I would have someone to be angry with. Someone to retaliate against, to beat up or embarrass for messing with my family. Her cancer cells are dead. And in the wake of their progressive replication, I'm left feeling completely lost.
I feared that I would forget her laugh, or her smiles. Then I thought that part of the healing process would include forgetting enough where I am left in a place where I can remember enough to enjoy our time together and not enough to take on her pain as my own.
Zeppo Young finds joy in the simple things in life, such as digging around in his garden, and fermenting vegetables.
The Zoë Faye Foundation's mission is to provide support and assistance to children diagnosed with Malignant Rhabdoid Tumors, Atypical Teratoid Rhabdoid Tumors, and Non-CNS Extrarenal Rhabdoid Tumors, and their families; provide pathways to information, financial relief, and raise awareness for rare pediatric cancers, and funds for researchers who focus on Rhabdoid Tumors and related cancers with the hopes of achieving a cure.