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First steps

5/9/2012

1 Comment

 
Laura mentioned in her blog that I picked up Zoë's ashes from the Boucher Funeral Home yesterday.  It  wasn't as hard as I expected.  Obviously, I wish I didn't have to do any of this. It is what happened and what was needed to be finished.  As strange as it may sound, I am just so happy to have my baby girl home.  Her little blue urn has white birds on the side.  Its called, "coming home birds."  I'm so happy that my little bird has a permanent nest built in my heart and any place I call home. 

During the drive from Pascoag to Webster, I talked to Zoë like I would have before and occasionally caressed her urn, like she might be sitting next to me and I was patting her leg.  "Baby girl, together we are going to accomplish many, great deeds." 

People often comment on my strength, I pray for the strength to see her foundation through.  One of my goals is to contact the Central Massachusetts branch of S.C.O.R.E. and learn to take my first step as guardian of my dream of a little girl who touched my life.  As long as I am using my lungs and can move my legs, I will chase cancer right off the planet.  It doesn't have a place here.  No on invited you, cancer, and you have overstayed your visit. 

Are you a survivor?  Have you lost anyone dear?  Do you know someone who is fighting the good fight? In your opinion, what can make a difference in one person's battle with the awful disease?

When I was working and making the commute to Boston, it really helped me out when someone gave me a Mobile Gas Card.  How I was going to buy fuel was one less thing that I had to think about.  And at that time, precious moments were so few that my family was the only thing I needed to think about. 

What else helps?  I'm curious to hear your opinions.
1 Comment
Bethany
5/17/2012 10:56:32 am

I read your post a few days ago and have been thinking about what helps....first though I am happy that your little girl is home with you. You have both accomplished great things and will continue to do so.

I do have to agree with the gas cards. My best friend had her little boy at only 30 weeks gas was a big expense with all the traveling back and forth to the hospital. We had meals delivered/catered to their home that they say was extremely helpful. I think the biggest thing is to ask them how they are and just be there to listen.

I also have to say that my father in law recently passed away from cancer when my son was only 6 moths old. He recorded him a hallmark frosty the snowman book. It is the hardest but best thing to listen to. I told my friend about this and before she had a kidney transplant she recorded a book for her son(coincidently the same one born at 30weeks) he was able to hear his moms voice every night while he couldn't see her. He loved it!!

I think that you and Laura are amazing parents and people. Zoe is extremely lucky to have you for parents. My thoughts are with you, I will never forget your precious little angel.

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    Zeppo Young finds joy in the simple things in life, such as digging around in his garden, and fermenting vegetables. 


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The Zoë Faye Foundation's mission is to provide support and assistance to children diagnosed with Malignant Rhabdoid Tumors, Atypical Teratoid Rhabdoid Tumors, and Non-CNS Extrarenal Rhabdoid Tumors, and their families; provide pathways to information, financial relief, and raise awareness for rare pediatric cancers, and funds for researchers who focus on Rhabdoid Tumors and related cancers with the hopes of achieving a cure.