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Prayers for Baby Blake 

10/13/2012

6 Comments

 
For the last couple of days, I have written some words and deleted them.  I have something I need to say.  But I just don't know how when I cannot think of anything good to say about Rhabdoid Tumors. 

It should be easy then, right?  Because what I want to write about is not the cancer specifically, but a nice family I recently meet through Facebook.  They lost their son to a Rhabdoid Tumor, like Zoë's.  He was born with MRT and for six weeks, he battled for his life.  I cannot fathom what they experienced from the very beginning.  Zoë was born healthy and then two months later one microscopic cell did not replicate correctly and then before long, we were living day to day with the worst news a parent could have delivered. 

Baby Blake was beautiful boy born on August 22nd, 2012 with a Malignant Rhabdoid Tumor.  I learned about his battle and his family's struggles a few days ago.  Once I visited their Facebook page, Blake had already passed on October 5th.  His parents were already making his funeral arrangements.  I felt devastated for their loss, because I know how hard it was for Laura and me to leave Zoë's body behind at the funeral home. 

Baby Blake is no longer in pain, he killed his cancer.  A feat that the most intelligent scientists are still unable to accomplish.  It is terrible that the victory came with such a high price.  But that baby boy is no longer in any pain.  He will be remembered by many people, especially his loving parents. 

My hopes are that the MRT community can come together and battle on for children like Zoë and Blake.  They will be missed, but our challenge to this cancer has been set.  Our journey together against this wicked villain has begun.  We shall Battle On! together!

Please visit the Facebook page made in honor of Baby Blake and his loving parents.  Parents should never have to be expected to do what they are living right now.  Blake's parents are in need of your support and encouragement. 

Rest in Peace, Baby Blake.  Your parents pain is unimaginable right now, but will ease as the days continue.

http://www.facebook.com/prayersforourbabyblake
6 Comments
Jessa
10/22/2012 12:21:15 am

Hiya Zeppo. Thanks for sharing this. Before I learned about you, Laura, and Zoe, I had always been too sad, too devastated by stories like this. I would not look at them. I would play on my phone at the movies when the commercials for The Jimmy Fund came on, change the channel on the TV, do anything to distract myself from the fact that this type of pain exists in the world. One thing that I promised myself when I read every last word of your and Laura's blog is that I would not look away again. It is too important to acknowledge the painful fight that these children endure, to honor their and their parents' courage, and to celebrate their life. When I read this, I was tempted to look away. I can't even imagine the pain that you go through. Thank you for sharing.

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Zeppo
10/22/2012 03:02:10 pm

It think it is important to witness their struggles. For one, it will make my own troubles seem small and petty. For another, their strength will give me courage to live my life to my fullest. I hope your recognize that their strength will give you the courage to live your life to your fullest.

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Zeppo
10/22/2012 03:01:42 pm

It think it is important to witness their struggles. For one, it will make my own troubles seem small and petty. For another, their strength will give me courage to live my life to my fullest. I hope your recognize that their strength will give you the courage to live your life to your fullest.

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Rebecca Turner
10/29/2012 04:23:20 am

Thank you so much for this. After an extremely hard weekend missing Blake, this had made me feel better. I am so happy I have gotten the chance to meet you both through facebook and to know we arent alone. I just know Zoe and Blake's memories will live on.

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Zeppo
10/29/2012 05:17:09 am

We are here for each other, that is why this website exists. I understand how you might have had a hard weekend missing Blake. This day last year, Laura, Zoë and I had an amazing photo session, where I got some of my favorite pictures of my baby girl. It snowed last year on this, and now, one year later I am spending the day in my living room with the fire place roaring, with the rain and winds picking up, but without my one year old child. I can't begin to know what you are feeling, though we experienced something so close in nature. There will be days that hurt more than others, there will be good days. There will be this website for complete strangers to meet and know that they are not alone.

Reply
millie hirsch
11/1/2012 03:54:09 am

I witnessed baby Blake's journey into heaven (I am a volunteer at Hospice House where Blake lived his last two weeks). I don't know anything worse than the Rhabdoid tumor that took over baby Blake's body. He fought so hard to live. My husband passed two years ago and I have a note on his picture and it says "Until heaven...and then forever" and Rebecca you'll see Blake again. God bless you and your wonderful family

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    Zeppo Young finds joy in the simple things in life, such as digging around in his garden, and fermenting vegetables. 


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The Zoë Faye Foundation's mission is to provide support and assistance to children diagnosed with Malignant Rhabdoid Tumors, Atypical Teratoid Rhabdoid Tumors, and Non-CNS Extrarenal Rhabdoid Tumors, and their families; provide pathways to information, financial relief, and raise awareness for rare pediatric cancers, and funds for researchers who focus on Rhabdoid Tumors and related cancers with the hopes of achieving a cure.