The Zoë Faye Foundation
  • Home
    • Malignant Rhabdoid Tumor
    • Miss Zoë Faye >
      • Balloons for Zoë >
        • Balloon Launches and Other Stories
      • Prayers For Zoë
  • Little & Fierce
  • A Posse Ad Esse
  • Support
    • Team Zoë Gear
    • Zoë's Team Members
    • Events >
      • Past Events
      • Event Photos
    • Donations
  • Contact Us

Day One Post Op

2/24/2012

1 Comment

 
Around 2:00 PM (EST)
Zoë is resting... I use that term loosely.  She has a rash on her face that is pissing her off. As well as a bit
of a fever. We have to hold down her left arm because she keeps rubbing her rashy face.

Around 4:00 PM (EST)
Wrapped up tight so she cannot reach her face.
Picture
Around 7:30 PM (EST)
Snug.
Picture
And finally a recap of the day:
So Zoe's fever has broken.  She is resting and comfy too now that she has some anti itch meds running constantly.  
  
So when she first was up in the ICU she was not nearly as puffed up as we expected.  From head to toe she had, a tube to drain her stomach in her nose, an IV in each hand, her broviac, the two nephrostomy tubes a drain in the
incision to drain her abdomen, a catheter, an arterial li...ne and an IV in her right foot, and an IV in her left foot. So needless to say nearly more bionic than baby.

The IV's in her hands were removed late last night, which allowed her to bang and rub at her  face.  But also allowed her to be a little more comfortable.  So much infact that she let me sleep today!  Hence my late in the day update.

So what else is going on?  Not much.  The constant ebb and flow of doctors in and out.  Some nurses peeking in from her first stay on the ICU floor.  She has quite the fan club here.  *smiles*

I was able to go visiting the 6th floor today to let everyone there know just how well Zoe is doing, and how we cannot wait to be back on the 6th floor again.  For now she will stay in ICU for tonight, but may move to either the 10th floor (surgery/urology) or back to the 6th tomorrow or the day after as long as she keeps up the good work that she is doing.
  
Zoe is still fighting with the nurses, and will not keep the leg cuffs on (designed to protect her from pulling out the arterial line and IVs).  She is also very alert when awake, and looks around and watches everything.
  
All in all it was a great day.  Now to have a great night.

Love and Hugs from CHB PICU!

P.S. So much more to write but I am going to pass out again.  Much more tomorrow.  *smiles*
1 Comment
Amy Dame
2/24/2012 09:36:09 pm

So glad to hear she seems to be doing good.

Reply



Leave a Reply.

    Author

    Laura is Zoë's mommy.  Forever and Always.

    Archives

    April 2015
    March 2015
    August 2014
    January 2014
    October 2013
    August 2013
    June 2013
    May 2013
    April 2013
    January 2013
    December 2012
    November 2012
    October 2012
    September 2012
    July 2012
    June 2012
    May 2012
    April 2012
    March 2012
    February 2012
    January 2012
    December 2011

    Categories

    All

    RSS Feed

The Zoë Faye Foundation's mission is to provide support and assistance to children diagnosed with Malignant Rhabdoid Tumors, Atypical Teratoid Rhabdoid Tumors, and Non-CNS Extrarenal Rhabdoid Tumors, and their families; provide pathways to information, financial relief, and raise awareness for rare pediatric cancers, and funds for researchers who focus on Rhabdoid Tumors and related cancers with the hopes of achieving a cure.