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Early Morning Update:

1/5/2012

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So Zoë has had a rather not so restful night.  Her blood count is low again, and her heart rate is up, so they are getting ready to give her more blood.  She is also running a low fever.  So they are checking on her antibiotics to see what  would do best for her.  She is passing a lot of gas, and poop so she is not so comfortable that way either.  Her system is just starting ...up, and is not used to the two feedings that she had last night.

Her awesome doctor Andy came by late last night as I was crawling into my bed to let me know that her MRI came back clear!!!  What a relief.  So right now they are only worried about what they see in her abdomen.

Being a feisty warrior Zoë has been fighting the nurses all night, and not allowing them to get a good blood pressure.  She is just done with the blood pressure cuff.  She is also constantly pulling her arm off of one of her boards no matter how much tape they use.  Her strength is so amazing, both physically and mentally!

Mommy got little sleep last night because Zoë was uncomfortable, and cried a good part of the night.  She is just settling down now....so off to sleep I try again.
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    Laura is Zoë's mommy.  Forever and Always.

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The Zoë Faye Foundation's mission is to provide support and assistance to children diagnosed with Malignant Rhabdoid Tumors, Atypical Teratoid Rhabdoid Tumors, and Non-CNS Extrarenal Rhabdoid Tumors, and their families; provide pathways to information, financial relief, and raise awareness for rare pediatric cancers, and funds for researchers who focus on Rhabdoid Tumors and related cancers with the hopes of achieving a cure.