So as you all can tell by my not posting yesterday it was a long day. I had only 3 hours or so of sleep, and with Zoë having her broviac put in it felt like an even longer day.
The procedure went very well. Zoë now has the broviac in place, and it is working wonderfully. She woke up in recovery and was fighting with the nurses immediately. She calmed down once I was bedside, and Zeppo showed up at the hospital in time to help her recover, and to walk her up to her room.
Zeppo and I had a wonderful night. We ordered in from Burtucci's, yum! I was STARVING since I did not get anything more than breakfast into me all day. We watched an episode of Psych, and Zoë slept.
Earlier in the day Zeppo and I had a long conversation with the doctors about Zoë's treatment plan. It is very difficult for me to discuss these plans with the doctors. They don't want to offer up miracles (that is what you are
all for, with your prayers, and positive energy), and they don't want to be discouraging, but the reality is rough. I personally am a realist, I understand what is going on, but for now I am chooseing to live in the moment. I still
have not done even one online search for information about her cancer. It is not that I don't want to know, it is that I cannot know now. I prefer to live day to day, and focus on the amazing job she is doing in the moment.
The discussion that we had with the doctors zapped my energy. I had so little of it to begin with (only 3 hours of sleep and all...plus not enough food....) so I has a much needed melt down on the phone with my mother. This made me feel way better, and refocused. Thanks Mom!
I believe we also have a good plan in place for her treatment, and I am anxious for the next round of chemo to
start. She will have it sometime either later this weekend, or early next week. Her bum rash is looking way better this morning, and as long as the broviac heals up quickly she will be ready for her next round.
I know they are also looking at removing the left kidney tube. I believe they will be doing an ultrasound sometime today or this weekend to see how the kidney is doing. I would love for her to have one less tube.
We also have some other great news. Her belly is measuring down again. I will not post the exact measurements yet, as they are fluxing up and down, but they are down again from the last time I posted a measurement. I feel like if I post I may jinx it...so sssssshhhhh.....but YAY!
In other news:
We have moved rooms. We are still in the same wing of the hospital, but the heat stopped working in our room. This is not good when you have a baby who wants to sleep with her arms over her head ALL THE TIME. Her poor hands were freezing, and one of her temps were low yesterday. So we are now one room over. What stinks is this
room is a lot smaller... So I am relearning that dorm room living feeling. Good thing I had practice with an even smaller room in college. The upside to this is the chair bed I have now is WAY better! :) I won't need as much
physical therapy for sleeping on this one, hehehe. The other positive, we are still in a single room, and not having to share, so we can still sing and dance too!
Today's post is brought to you today by the comfort of a big blue chair, a window with a patch of sky, and a peacefully sleeping baby.
Love and Hugs!
The procedure went very well. Zoë now has the broviac in place, and it is working wonderfully. She woke up in recovery and was fighting with the nurses immediately. She calmed down once I was bedside, and Zeppo showed up at the hospital in time to help her recover, and to walk her up to her room.
Zeppo and I had a wonderful night. We ordered in from Burtucci's, yum! I was STARVING since I did not get anything more than breakfast into me all day. We watched an episode of Psych, and Zoë slept.
Earlier in the day Zeppo and I had a long conversation with the doctors about Zoë's treatment plan. It is very difficult for me to discuss these plans with the doctors. They don't want to offer up miracles (that is what you are
all for, with your prayers, and positive energy), and they don't want to be discouraging, but the reality is rough. I personally am a realist, I understand what is going on, but for now I am chooseing to live in the moment. I still
have not done even one online search for information about her cancer. It is not that I don't want to know, it is that I cannot know now. I prefer to live day to day, and focus on the amazing job she is doing in the moment.
The discussion that we had with the doctors zapped my energy. I had so little of it to begin with (only 3 hours of sleep and all...plus not enough food....) so I has a much needed melt down on the phone with my mother. This made me feel way better, and refocused. Thanks Mom!
I believe we also have a good plan in place for her treatment, and I am anxious for the next round of chemo to
start. She will have it sometime either later this weekend, or early next week. Her bum rash is looking way better this morning, and as long as the broviac heals up quickly she will be ready for her next round.
I know they are also looking at removing the left kidney tube. I believe they will be doing an ultrasound sometime today or this weekend to see how the kidney is doing. I would love for her to have one less tube.
We also have some other great news. Her belly is measuring down again. I will not post the exact measurements yet, as they are fluxing up and down, but they are down again from the last time I posted a measurement. I feel like if I post I may jinx it...so sssssshhhhh.....but YAY!
In other news:
We have moved rooms. We are still in the same wing of the hospital, but the heat stopped working in our room. This is not good when you have a baby who wants to sleep with her arms over her head ALL THE TIME. Her poor hands were freezing, and one of her temps were low yesterday. So we are now one room over. What stinks is this
room is a lot smaller... So I am relearning that dorm room living feeling. Good thing I had practice with an even smaller room in college. The upside to this is the chair bed I have now is WAY better! :) I won't need as much
physical therapy for sleeping on this one, hehehe. The other positive, we are still in a single room, and not having to share, so we can still sing and dance too!
Today's post is brought to you today by the comfort of a big blue chair, a window with a patch of sky, and a peacefully sleeping baby.
Love and Hugs!
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