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Good Morning!

1/6/2012

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So Zoë is getting a wee bit more blood this morning.  She is low again, mostly because they keep taking blood for tests...  She is snoozing at the moment, and allowing me to begin some of the paperwork that goes along with this hospital stay.  I fear that I will be knee deep in file folders before this is all over.

Last night Zoë had me up for a good part of the night.  I think her shedule is flipped, even with all of the doctors and nursing staff at her all day.

Today's only test as far as I can tell is an X-ray of her lungs to just insure that they are remaining clear.  There isn't any indication that there is a problem...but because she has been getting blood they need to make sure she is not getting fluid in her lungs.

The plan for her as far as I can tell is to start looking into having the tubes removed from her Kidneys starting on Monday.  They will have to run tests first to see how they are functioning and we will go from there.  I cannot wait for her to be peeing like a normal baby.

My plan is to get a nap in this afternoon...now I know I talk a lot about me sleeping.  That is just what it is...all talk.  Zoë must know the moment my head hits the pillow because I am getting less and less and less sleep as time goes on.....  The one amazing thing is that the less sleep I get the quicker I can get out of bed when she is crying.  I cannot wait until I can pick her up and carry her around the room and dance with her again.  :)  
 
 Off to do more paperwork...

Love and Hugs!!

P.S.  Oh I almost forgot (and how could I??)....last night after nursing Zoë smiled for the first time since the 23rd of December!!  A nurse tickled her cheek and she gave a big grin.  :)  It was the most beautiful thing that I have ever seen.  Now to get her to grin at her Mommy.
 
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    Laura is Zoë's mommy.  Forever and Always.

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The Zoë Faye Foundation's mission is to provide support and assistance to children diagnosed with Malignant Rhabdoid Tumors, Atypical Teratoid Rhabdoid Tumors, and Non-CNS Extrarenal Rhabdoid Tumors, and their families; provide pathways to information, financial relief, and raise awareness for rare pediatric cancers, and funds for researchers who focus on Rhabdoid Tumors and related cancers with the hopes of achieving a cure.