Today is an extra special day. My Grandmother's (Zoë's Great-Grandmother's birthday). The day that we announced that we were having a baby girl the first thing my father said to my mother was, "Of course Laura is having a girl, Memere would not have it any other way." I have always had a close connection to my Memere, she was so very special to me. I have always held her in my heart, and thoughts especially on her birthday. Today I know that my Memere is not only watching over me, but she is one of the brightest stars in the sky during this
long night for Zoë. Memere would have loved Zoë, and would have eaten her up. Quite literally, Memere was known for biting cheeks. Hehehe.
It has also been a wonderful day for Zoë. For the first time since December 26th she has been disconnected from all her monitors, and tubing. She will be reconnected to her feeding IV tonight. She will also be getting the Feeding
Tube replaced down her nose. This is to give her some extra calories. Zoë has been loosing weight. Now the oncologists are happy about this, because they think that the tumor is shrinking. The nutritionist are not happy about this because they think that she is loosing weight. So to satisfy the nutritionists she will be giving the extra calories. This is also good from the oncology standpoint, as she will have more body fat for the next round of chemo. If she is nauseous, or does not want to eat as much at least she will have some of her own fat to use during those days.
So she did not get her test done on her kidneys today...boo...but only because of scheduling issues. Her doctor was also not in, and they want her urologist to be there for the test. So she is scheduled for tomorrow at 7 in the morning. This means another EARLY day for me, as I will have to get up super early to feed her before she has the
anesthesia.
Amazing things for today:
There is a discussion starting about her going home! I guess I have not been so clear on this, and many people have been asking if Zoë will be in the hospital the whole time. No. Zoë will be able to go home at times. At this point I know that she will be admitted during each round of Chemo (this could change depending on how well she
handles the treatments). She will also be hospitalized if she has a fever at any point (she had one this round of chemo, so chances are she will get them again). There will be a LOT of back and forth from Webster to Boston in the next year for all of us.
Her belly button is nearly flat!!! Ok...so I don't know if I have discussed just how big her belly got, but it was SO
distended and her skin SO tight, and red that she looked like she could pop. Her belly button (inie) became an outie, so much so that it began to bruise as it was being pushed to the max. She still has the bruise (boo), but overall her belly looks so good!
She is fighting naps! Oh...so not so good for me...but I am starting to really see her personality again.
Her immunity is on the rise and fast! She bounced back very fast. The doctors are so impressed with her bone marrow, and her healing abilities. If she reacts the same way to the next round of chemo she may be able to stay on a three week schedule. This will make the process go much faster.
There was the briefest sentence about having her surgeon look at her after the second round of chemo for the removal of the tumor. This does not mean that the oncologist think she is anywhere ready for the removal...but they want the surgeon to start keeping track of her progress so he can best judge when the time is right.
In more news:
Blondine was back to mop our floor, and say a little prayer for Zoë. Made me smile. :)
Jen and Steve totally saved me from the dense, long winded, boring social worker who does not get the hint that I don't want to sit for an hour and chat with her.... THANK YOU! I also got some much needed big hugs, and conversation hearts, hehehe. Zoë is also snuggling with her new monkey, and looking up at her new beautiful balloon. Tonight we will try out her in the dark toy. :)
This mom is tiard! I did not really accomplish 1/2 of what I wanted to do today... and I don't plan on it. I am about to flip open my bed, and crash out with Zoë.
Now I have noticed a trend. I type that I will nap, and Zoë wakes up...and I don't actually nap... So fingers crossed that Memere can help me out a bit, and put her hand on Zoë and keep her calm and quiet for a bit.
I love you
Memere! Happy Birthday!
long night for Zoë. Memere would have loved Zoë, and would have eaten her up. Quite literally, Memere was known for biting cheeks. Hehehe.
It has also been a wonderful day for Zoë. For the first time since December 26th she has been disconnected from all her monitors, and tubing. She will be reconnected to her feeding IV tonight. She will also be getting the Feeding
Tube replaced down her nose. This is to give her some extra calories. Zoë has been loosing weight. Now the oncologists are happy about this, because they think that the tumor is shrinking. The nutritionist are not happy about this because they think that she is loosing weight. So to satisfy the nutritionists she will be giving the extra calories. This is also good from the oncology standpoint, as she will have more body fat for the next round of chemo. If she is nauseous, or does not want to eat as much at least she will have some of her own fat to use during those days.
So she did not get her test done on her kidneys today...boo...but only because of scheduling issues. Her doctor was also not in, and they want her urologist to be there for the test. So she is scheduled for tomorrow at 7 in the morning. This means another EARLY day for me, as I will have to get up super early to feed her before she has the
anesthesia.
Amazing things for today:
There is a discussion starting about her going home! I guess I have not been so clear on this, and many people have been asking if Zoë will be in the hospital the whole time. No. Zoë will be able to go home at times. At this point I know that she will be admitted during each round of Chemo (this could change depending on how well she
handles the treatments). She will also be hospitalized if she has a fever at any point (she had one this round of chemo, so chances are she will get them again). There will be a LOT of back and forth from Webster to Boston in the next year for all of us.
Her belly button is nearly flat!!! Ok...so I don't know if I have discussed just how big her belly got, but it was SO
distended and her skin SO tight, and red that she looked like she could pop. Her belly button (inie) became an outie, so much so that it began to bruise as it was being pushed to the max. She still has the bruise (boo), but overall her belly looks so good!
She is fighting naps! Oh...so not so good for me...but I am starting to really see her personality again.
Her immunity is on the rise and fast! She bounced back very fast. The doctors are so impressed with her bone marrow, and her healing abilities. If she reacts the same way to the next round of chemo she may be able to stay on a three week schedule. This will make the process go much faster.
There was the briefest sentence about having her surgeon look at her after the second round of chemo for the removal of the tumor. This does not mean that the oncologist think she is anywhere ready for the removal...but they want the surgeon to start keeping track of her progress so he can best judge when the time is right.
In more news:
Blondine was back to mop our floor, and say a little prayer for Zoë. Made me smile. :)
Jen and Steve totally saved me from the dense, long winded, boring social worker who does not get the hint that I don't want to sit for an hour and chat with her.... THANK YOU! I also got some much needed big hugs, and conversation hearts, hehehe. Zoë is also snuggling with her new monkey, and looking up at her new beautiful balloon. Tonight we will try out her in the dark toy. :)
This mom is tiard! I did not really accomplish 1/2 of what I wanted to do today... and I don't plan on it. I am about to flip open my bed, and crash out with Zoë.
Now I have noticed a trend. I type that I will nap, and Zoë wakes up...and I don't actually nap... So fingers crossed that Memere can help me out a bit, and put her hand on Zoë and keep her calm and quiet for a bit.
I love you
Memere! Happy Birthday!
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