So today was yet another wonderful day. Zoë is now down one more tube. She had her catheter removed that was draining her bladder. Since both kidneys are being tapped she does not need it. She also had suction stopped from the stomach tube.
The nurse this afternoon impressed upon me just how amazing these little changes are. She said that many kids get their suction stopped ...and they get really sick. Zoë slept nearly all day...so we know that she was not really sick. :)
She will keep her stomach tube for a bit longer because they don't want to have to replace it if they suddenly need it.
So far the only side effect that she seems to be having from the chemo is nausea, which they are treating with a drugs that helps her to relax, and not feel ill.
I am so happy that she has been sleeping a lot today because she did not sleep nearly at all yesterday. She spent the entire day looking around and being content and alert (totally amazing). Then in the evening she did not sleep much and I think that she was starting to battle the nausea that struck early in the morning.
The best part of today happened at 9:00 pm when her belly measured down a whole centimeter from its highest point. She has been fluxing up and down by a centimeter for the past 2 days. To better understand how amazing this is you have to know that from the 27th of December to the 30th of December her belly expanded by 5 centimeters. So to have the growth slow, or stop after one treatment is truely amazing.
I keep telling her that we are not trying to give her an image complex because we keep measuring her waist line. :)
I know this road to recovery and cure is going to be a long one, and there will be bad days. But as my husband said tonight for us this is not about the journey, but the destination. We will not enjoy this journey, but rather make the most of it, and focus on wonderful days like today.
The nurse this afternoon impressed upon me just how amazing these little changes are. She said that many kids get their suction stopped ...and they get really sick. Zoë slept nearly all day...so we know that she was not really sick. :)
She will keep her stomach tube for a bit longer because they don't want to have to replace it if they suddenly need it.
So far the only side effect that she seems to be having from the chemo is nausea, which they are treating with a drugs that helps her to relax, and not feel ill.
I am so happy that she has been sleeping a lot today because she did not sleep nearly at all yesterday. She spent the entire day looking around and being content and alert (totally amazing). Then in the evening she did not sleep much and I think that she was starting to battle the nausea that struck early in the morning.
The best part of today happened at 9:00 pm when her belly measured down a whole centimeter from its highest point. She has been fluxing up and down by a centimeter for the past 2 days. To better understand how amazing this is you have to know that from the 27th of December to the 30th of December her belly expanded by 5 centimeters. So to have the growth slow, or stop after one treatment is truely amazing.
I keep telling her that we are not trying to give her an image complex because we keep measuring her waist line. :)
I know this road to recovery and cure is going to be a long one, and there will be bad days. But as my husband said tonight for us this is not about the journey, but the destination. We will not enjoy this journey, but rather make the most of it, and focus on wonderful days like today.
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