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1/4/2012

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Today was a massive day of testing...and one of the best days for me since we have been here.

Zoë was woken up to her morning tests, weight, measuring her waist, then two phlebotomists poking
her more than once...gerrrr....for an IV in her arm to sedate her for her MRI. 
Lets just say that she was not happy by noon at all.

Then while waiting for her MRI she has the tube from her nose to her stom...ach pulled out (YAY!) only to be replaced with a feeding tube (Boo!).  Then an X-ray to insure that it is in the right spot.


Jess Duckett and Casey Dorman visited after Jess donated some blood for Zoë (THANK YOU JESS!)  While they were here they got to see the above tube removal, and replacement.  Jess sang some nice lullabies to Zoë.  Casey
disappointingly did not sing any sea shanties, but we all sang a verse of The Ramones - I Wanna Be Sedated just before Zoë was to be brought down for her MRI.  The MRI was a success I was told (they were able to get the images they wanted, no results yet).

Then the BEST part of the day!!!!!!!  Zoë was able to breast feed for the first time since December 26th at 9 in the morning!!  If you notice I have the time and date memorized.  This is because for a mother to not be feeding her child it is both physically and mentally painful. 

She latched on and ate with vigor.  She also filled her tiny tank up a bit too much for her first time out.  Because she ate so well the nurses are going to try to get her on a schedule so that the feeding tube can be removed (YAY!).  Oh how happy am I!!!!

Zoë passed out after eating...but has been prodded by nurses since due to shift change, and they want to get her vitals.  Darn it she is breathing, and her hear is beating let the poor thing sleep....  Oh well it is their job...  She is awake at the moment and I hope she will fall asleep very soon so that I too can catch some shut eye.  There wasn't any napping today for me, and I could really use some rest myself.

Love and Kisses from
Boston!
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    Laura is Zoë's mommy.  Forever and Always.

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The Zoë Faye Foundation's mission is to provide support and assistance to children diagnosed with Malignant Rhabdoid Tumors, Atypical Teratoid Rhabdoid Tumors, and Non-CNS Extrarenal Rhabdoid Tumors, and their families; provide pathways to information, financial relief, and raise awareness for rare pediatric cancers, and funds for researchers who focus on Rhabdoid Tumors and related cancers with the hopes of achieving a cure.