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The Big Kidney Test Day

1/10/2012

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Well this morning Zoë went in to Interventional Radiology for a kidney function test. This was a test done using die to determine if the tumor has shrunk enough to allow urine to pass from her kidneys down her ureters to her bladder. Zoë passed half of her test. Her left kidney appears to be functioning with out a problem. So they are going to clamp off the tube to that one and see if she gets urine to her bladder. The right kidney is a whole other story.

Zoë hates to be on her right side, and now we may know why. The tumor has grown in such a way that her right kidney is twisted backwards, and the right ureter is positioned horizontal towards her mid line rather than pointing down. The ureter is blocked, and there are several things that could be going on.

1. The ureter has been bisected by the tumor causing any urine to drain into the tumor (if it were allowed to do so, right now with the tube in place the urine is going out side of her body).

2. The tumor is pressing on the ureter and pinching off the urine and not allowing it to drain at all from the kidney.
 
3. The tumor has caused the ureter to basially disconnect and there is no longer a way for the urine to get to the bladder.

None of the above will be known until the tumor shrinks more. If the ureter is disconnected it can be reconnected with surgery.

In other news:
Zoë and I got little to no sleep yesterday. After the feeding tube (NG Tube) was replaced she had a 4 hour freak out over 8 hours or so. She was over tired, angry, hungry (she had another epic puke). As I posted yesterday I wanted to sleep. I don't think that I will bother posting about sleep because when I do...I don't get any... Bedtime was around 12:30 I was up at 3 for a feeding. Then at 5 the nurse woke me because they thought that she would nurse again...but then decided to not have her nurse. I was back up at 6:30 to get ready for her 7AM appointment with
Interventional Radiology.... Yeah, not a lot of sleep.

Epic puking. Still trying to figure this one out. It could be from an oral medication (antibiotic), or from over eating with her smaller stomach.  Either way I would like to not have to be forced into doing laundry.

NG Tube: I asked today if the extra feeding they are giving her at night will make her less likely to want to nurse. I was told that it will not because it is given slowly over several hours, and she should be digesting it nearly at the same rate that it is going into her. She should still wake up and be hungry to nurse. The doctors will remove it if she keeps fighting it. Oh and fight it she does. She uses her throat and nose to snort and cough it up. She also sneezes, and grunts it up. All of her tactics work, it slowly comes out, and the mean nurses push it back into place. Boo. She has yet to get her hands on it...but I am sure that will happen sooner than later.

Right now Zoë is sleeping. I wish I could but paperwork...ugg.

Maybe a hot meal? Or a shower that is not brought on by being puked all over?

Maybe I will settle for a few minutes of quiet and zone out with my book. I am so close to the end, and it is so good!

This report brought to you today by anesthesia.

Love
and Hugs from CHB!
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    Laura is Zoë's mommy.  Forever and Always.

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The Zoë Faye Foundation's mission is to provide support and assistance to children diagnosed with Malignant Rhabdoid Tumors, Atypical Teratoid Rhabdoid Tumors, and Non-CNS Extrarenal Rhabdoid Tumors, and their families; provide pathways to information, financial relief, and raise awareness for rare pediatric cancers, and funds for researchers who focus on Rhabdoid Tumors and related cancers with the hopes of achieving a cure.