Before today even dawns I know it begins three of the longest, hardest, days of my life.
I woke feeling full of love, said my good mornings, and stretched. As I contemplated these three days I made three vows:
One: To never let Zoë's light fade. To tell her story. To share just how amazing she was, and still is. To let the world know how courageous, and loving, and happy she was amidst the worst. How she was and is loved so deeply.
Two: To give back, and help other families suffering with this horrible malignant rhabdoid tumor. We will be turning her cancer fund into a foundation. We will continue to raise money in her honor, and give it to those few families who will get the worst news of their lives. If we can help them by putting oil in their tank, gas in their car, pay a weeks rent at the Ronald McDonald House, make a call for them to connect them to the right people for help. What ever it is we can do to help.
Since MRTs are so rare we will be able to focus our efforts and give a lot to a few, rather than a little to many. We hope to really make a difference, because like I have said before, we know the numbers. We know it is not good. We lived like those numbers did not exist, and we hope that we can make others live that way as well while they wait for their miracle, and a cure.
Three: I will fight my damnedest against cancer. I will encourage people to give blood, be organ donors, and inform people just how important these simple tasks are. I will educate people about childhood cancer, and how devastating it is, and just how important research is, as well as funding for that research.
I will advocate for a whole host of things that my eyes are wide open to, and I will do my best to open the eyes of those around me.
I will continue on...I will continue to write, and like so many have been asking, in time, as it evolves I will write a book that can hopefully be a source of comfort, a bit of light, and help to those who are directly, and indirectly suffering from the effects of childhood cancer.
My dearest love. My little girl. I promise you this and more.
Forever and ever and ever.
Mommy LOVES you, yes she does, yes she does, Mommy loves YOU.
I woke feeling full of love, said my good mornings, and stretched. As I contemplated these three days I made three vows:
One: To never let Zoë's light fade. To tell her story. To share just how amazing she was, and still is. To let the world know how courageous, and loving, and happy she was amidst the worst. How she was and is loved so deeply.
Two: To give back, and help other families suffering with this horrible malignant rhabdoid tumor. We will be turning her cancer fund into a foundation. We will continue to raise money in her honor, and give it to those few families who will get the worst news of their lives. If we can help them by putting oil in their tank, gas in their car, pay a weeks rent at the Ronald McDonald House, make a call for them to connect them to the right people for help. What ever it is we can do to help.
Since MRTs are so rare we will be able to focus our efforts and give a lot to a few, rather than a little to many. We hope to really make a difference, because like I have said before, we know the numbers. We know it is not good. We lived like those numbers did not exist, and we hope that we can make others live that way as well while they wait for their miracle, and a cure.
Three: I will fight my damnedest against cancer. I will encourage people to give blood, be organ donors, and inform people just how important these simple tasks are. I will educate people about childhood cancer, and how devastating it is, and just how important research is, as well as funding for that research.
I will advocate for a whole host of things that my eyes are wide open to, and I will do my best to open the eyes of those around me.
I will continue on...I will continue to write, and like so many have been asking, in time, as it evolves I will write a book that can hopefully be a source of comfort, a bit of light, and help to those who are directly, and indirectly suffering from the effects of childhood cancer.
My dearest love. My little girl. I promise you this and more.
Forever and ever and ever.
Mommy LOVES you, yes she does, yes she does, Mommy loves YOU.
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